Day 276 - Lots of Outfit Changes on a Lazy Saturday

Saturday, October 2nd, 2021

Finally a day that Mom and Dad can enjoy James by themselves. Sometimes it's nice to have privacy and not have a nurse in the room with you 24/7. 

James typically wakes up around 7am, which means it's still dark outside. Mom moved him to her air mattress to get some morning snuggles. On a side note, this is the 3rd air mattress that doesn't hold air. Come to find out from the internet, this is a thing that just happens, they aren't meant to be used daily. So we ended up purchasing a collapsible bed that folds in half with a real mattress that we can just move to the side during the day. 

Dad started off the day with going to the office to run the PB&J for Tampa Bay nonprofit, then ran a local personal growth meeting in the afternoon before driving around giving out sandwiches to the homeless.

Mom held down the fort at the house and had James listen to a lot of different music. He gets really emotional listening to Leon Bridges, it's adorable.

Unfortunately James' G-tube was leaking pretty bad throughout the day and we needed to change his clothes 3x. You don't want a soaked gauze of gastric juices sitting on his skin, it will get very irritated.

Cute pajamas from Dee and Grandpa Don!

P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️

P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all of you be a part of something so special! 😭

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