Day 404 - New eBay Trach Was Delivered!

Monday, February 7th, 2022

Today, one of James' maternal great grandpas would have been 114! 🎉🥳

In the afternoon we got labs done at the hospital. This was to check on James' Sodium Chloride levels since we decreased the dose in half. It was a one stick blood draw because we had excellent IV team members available! 

He did his 2 hour daily eye patching, spent time in his bouncer, and worked hard on his turnout. 😂 James has been putting more weight on his feet! Video below shows how aggressive James can get about trying to eat everything! 

Mom received the new trach that she had to buy from eBay and immediately called ENT to schedule for appointment for the trach change and scope. They were able to get us in tomorrow morning! After seeing the return address label, Mom figured out this trach was being sold from a Trach Mom in the FB group. It's actually illegal to sell medical supplies that were covered by insurance, and pretty crappy to charge another Medical Mom. Everything in these groups is always free, you just have to pay for shipping. Mom needed to make some moves, and unfortunately since she couldn't get any to follow through on Facebook she didn't want to delay James from getting weaned off the ventilator. So tomorrow hopefully we hear some good news!


P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

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