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The Journey of James Weston

Merry Christmas Everyone!

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December 28, 2023

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LindsayJanuary 16, 2024 at 10:57 AM
Yes! It is amazing to see James interact with her and can only imagine them playing together! ❤️
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James Takes His 1st Independent Steps!

August 13, 2024

Today was Day 7 out of 15 of James' Intensive PT/OT at Wolfson's! Taking his first independent steps! 😭😭😭 Thank you everyone for the love and support! This summer has been INTENSE between learning how to walk and weaning off the feeding tube! Huge progress though!

First Full Day of Pre-K 🎒 🟰 Off of Oxygen!

April 20, 2024

Yesterday was James's first full day of Pre-K! For the past 2 months, James has only been able to do half days because of nap time; he required oxygen while sleeping. The great news is that James is now officially off oxygen completely! Also, we have worked with our GI team and the school nurses for them to be able to administer G-tube feeds at school, so he can stay a full day! It's so important to take the time to celebrate the wins because with a medically complex kid, there is always something to be working on! 👍🏻 From ventilator weaning to stopping the ventilator completely, to scheduling decannulation, to getting the trach stoma closed, to graduating from a GJ to a G-tube, to getting off of oxygen... It feels never-ending! That is just the medical side of it. There are also those normal things like walking, talking, eating... James has done great with those as well and cognitively he is acing everything! I recently saw a post from John Israel talking about perpetual dis...

Ella is 3 months old!

March 04, 2024

Today Ella Jade is 3 months old! These are photos of her first 3 months. She is the sweetest little thing and about 12lbs! 🩷 Her little coos and smiles bring us to tears, absolutely adorable! 🥹 Everyone who meets her says, "She's like a doll". Sometimes it feels like this isn't real. Ella is always looking around the room, especially at whatever James is doing, just taking it all in. She is so strong, trying to stand, and holding up her head on her own. James continues to be such a sweet and gentle big brother. He is so excited about teaching her things, mainly about the difference between an oboe and a clarinet, or a mandolin and a banjo, but he's also really into circles and pentagons. 😂 Ya know normal toddler things. Time is going by too fast! These first three months have been a little crazy with the newborn stage, exclusively breastfeeding around the clock, and cluster feedings in the middle of the night. Although there were definitely days of no sleep, it...

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    Merry Christmas Everyone!
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Diuretic
Loading the car
LTV
Preeclampsia
Trach Baby
Trach Change
Ventilator
Withdrawal