Day 86 - Care Conference Day
Friday, March 26, 2021 Today we had our Care Conference that went really well. We met with the Pulmonologist, our Social Worker, NICU Case Manager, PICU Director, PICU RN, our Patient Care Advocate, and our NICU Doctor in a conference room for an hour and a half. They answered a lot of the questions that we had and now we feel more informed and very supported. In summary, we left the meeting getting his surgery scheduled for about a week from now. They will be doing a tracheostomy and a g-tube at the same time which makes scheduling tricky finding availability for both doctors. His weigh-in tonight is 3050 grams (6lb 11oz)! A few of the questions we prepared for the Care Conference and the answers we received. What are the stages and steps to get discharged and go home? James needs to be at 5,000 grams in order to get on the home ventilator. His ventilator settings need to decrease. What is the timeline for ahead/behind compared to other children for brain function and beh...