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Showing posts from May 16, 2022

Day 502 - Side Sleeping & Searching for G-tube Extensions

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Monday, May 16th, 2022 *Please note if you are reading this update in your email as a subscription to "The Journey of James Weston" blog it does not show the videos uploaded to YouTube. Please click here ( bit.ly/JamesWestonBlog ) to go to the blog directly. This helmet is really helping James sleep on his sides which is so good for his torticollis! Mom reached out to multiple Facebook groups today asking for anyone who has a specific G-tube extension (Ref 6-1222). The DME is claiming they are on backorder because we haven't received any since January. We were used to getting 4/month. This is why it's so important to be frugal with supplies, just in case of a supply chain issue or an apocalypse.  James loves practicing on his ukulele. It's amazing to see him learn just from watching Dad. They are always watching and taking it all in! Video below. Sweet Baby James napping. P.S. Do you follow James' journey? James would love to read an email from you. His email ...