The Journey of James Weston

Only posting this 2½ months after we received them 😂...but better late than never!  This year has been crazy busy with all of the hospital stays 🏥, the Disney cruise 🛳️ and then the corona virus 🤧, the emergency GJ replacements and last minute drives across the state 🛣️, the cancelled decannulation and RSV 🤒.  In February, Champ crossed the rainbow bridge 😥 and just last week Taylor and Mark tied the knot. 🍾 We think it's important to capture memories 📸, so for James' 2nd birthday 🎈 this past New Year's Eve we had a photographer come to Juju's house. We were so glad that the family could be involved. Emily did an excellent job and was very sweet and flexible with us! 😊 If you're looking for a photographer in the Jacksonville area definitely reach out to her! Some favorites below. Click the link to see the rest! Photoshoot 12/31/2022 📷  Emily Morris

Thursday, March 23rd, 2023 Today James started the morning at 6am with a wet cough and lots of suctioning of his nose. James has never really coughed before, even though this is the main symptom of RSV. Sometimes with trach kiddos it hits them differently. So today we had a pulmonology appointment scheduled. This appointment had been scheduled since the 1st of the year as just a follow up. Of course we thought this would have been an appointment to follow up post decannulation but alas it would not. Due to James' symptoms this morning Mom called them to cancel. They don't want sick kids there either.  Mom couldn't believe that James was feeling worse at Day 19 of RSV. This wet cough wasn't from the ear infection and he had never had a cough before with any of his previous trach infections, so it had to be lingering RSV. They said RSV would only last 2 weeks and here we are on week 3. Mom reached out to the Trach Mom's FB group to see if RSV had lasted longer for any...