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Showing posts from March 28, 2023

Day 818 - James' Increase in Vocabulary 📚 & Grandpa Leaves 🚗

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Tuesday, March 28th, 2023 James had another great night on the HME last, with saturations at 99! 💯 Physical therapy was in the morning and our therapist was really impressed with James' vocabulary. The book called "First Words" was what we were using. James literally pointed to everything correctly when we asked. Some of these things we swear he has never even seen. 📚 📞 Today after a few phone calls back and forth we finally got James scheduled for a GI appointment at USF with a doctor that is hard to get in with. The only problem is that it's scheduled for July. We only have a few more refills of his lansoprazole (prevacid). We wouldn't be able to get it refilled from the GI doctor we are leaving because we already transferred our records. After doing the math Mom figured out it will be a really close call. It looks like we will run out of the medication just 2 days after the appointment. 🤞🏻  As Grandpa Don was leaving back to the Orlando airport in the afte...