Day 478 - ER Trip to Wolfson's

Friday, April 22nd, 2022 So our GJ popped again! This time we made it to 5 months. In the afternoon, we took James for a ride in the car to run some errands. When we got home Mom lifted him out of the cart seat to the massage table to do his care and change his diaper. She noticed his GJ button was leaking through his shirt. As she lifted it up she saw that the balloon was deflated sticking out past his stoma, so she pushed it back in and taped it down with gauze. Time to go to the ER! Unfortunately GJ is not like a G-tube. A GJ can't be replaced at home and requires interventional radiology to do a fluoroscopy. We were out of town and had to have this replaced at a hospital we were not familiar with. After asking several locals everyone said that Wolfson Children's would be the best option. Overall, it was the same situation... Mom explaining what a GJ is to ER nurses who should already know, teaching the radiology techs difference between the two extensions and showing them ...