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Showing posts from April 25, 2021

Day 116 - What’s A Spell?

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Sunday, April 25, 2021 Morning :  James wanted to break Dad in last night and this morning and make sure that he gets a taste of what Mom gets to experience daily. James had spells almost every hour.   What’s a Spell? :  Heart rate drops to 80 or below. Oxygen drops to 80 or below. James holds his breath and turns red, sometimes purple. He sometimes has tremors with his arms. He cries silently, and sometimes makes yelps through his trach. Imagine watching a baby choking...that’s what the experience looks like.  Dad asked the doctor this morning what are the long term ramifications of these spells. Her response was that there’s not enough evidence to show that short spells (a few minutes) have any long term affects on the Baby’s development.  She said that longer spells (upwards of an hour) could lead to some issues and challenges. Luckily, James has been recovering from his episodes fairly quickly. It’s usually several minutes.   Unfortunately, thes...