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Showing posts from February 20, 2023

Day 782 - First Nutrition Appointment 🌮

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Monday, February 20th, 2023 Mom called the pulmonologist's office to let them know how our ENT appointment went last week see if we needed to move up our pulmonology appointment. We aren't scheduled to see them till the end of March but we have this airway evaluation on March 9th. 🤷🏻‍♀️ The admin there who is super nice told us she believed that pulmonology should be included on the procedure on March 9th, so she was going to reach out to our ENT doctor for the office notes from last week and get details. We had physical therapy at the hospital and this was the first time that Mom would stay in the lobby and not go back with James. He cried and screamed as the therapist walked away with him. Took him a few minutes to calm down but he eventually did. The therapy is only 30 minutes anyways. The therapist said James ended up playing with another kid. He was a former trachie and G-tube kid who was a year older than him. James supposedly took his toy from him, so we need to work w...