Day 454 - Leaking G-tubes & More Broken Ventilators

Tuesday, March 29th, 2022 Early in the morning, the RT from our DME showed up with another ventilator but unfortunately this one sounded worse. 🤯 She even made a comment about how another family she was seeing did not have a back-up ventilator so we were lucky that a 2nd one got approved. Like we should be grateful we have one working ventilator. Really? It took 6 months to get the back-up ventilator approved by insurance. The blood, sweat and tears of Mom, the Pulmonologist and several others. But we shouldn't complain about that back-up ventilator not even working...? The whole point of having a backup ventilator is that when these ventilators die (which clearly they do quite often since we are in the situation) James has a second chance. If his ventilator were just to stop working we would need to bag him with an ambu bag and call 911. We would be bagging all the way to the hospital with an increased chance for brain damage or death. So yes we went to the trouble of having insu...