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Showing posts from February 23, 2022

Day 420 - First Roadtrip to Jacksonville

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Wednesday, February 23rd, 2022 We did it! We left in the late afternoon and got on the road for a 4-Hour drive. Mom packed the entire car by herself and it took 1 hour. Managed to fit everything like Tetris including but not limited to the oxygen concentrator, stroller, pack and play, two ventilators, two suction machines, four oxygen tanks, a pulse ox machine, a humidifier for the vent, his feeding pump, and all of our luggage. Mind you the supply inventory spreadsheet to pack for this trip included 104 things.  Video below shows how excited James was that we arrived at JuJu's. At first we thought we would be sleeping in the library but it turned out that the tiered car did not roll on the carpet, so we moved out to the hardwood floors near the front door. We setup Mom's air mattress and James' pack n play. James was ready to pass out because it was his bedtime. We use the massage table for his trach care and James fell asleep during. Eventually when Mom writes a "How...