Day 377 - Pointless ENT Appointment
Tuesday, January 11th, 2022 Today James had a very pointless ENT appointment. The whole reason we were being scheduled was because our Pulmonologist wanted James to get scoped to see if James' tracheomalacia had healed. They did not scope him. Instead they just looked at his stoma and said to keep doing what we're doing because his site looked great. His thought was that since James had a decrease in his PEEP that his tracheomalacia had healed. Mom tried to explain the mess with the trach and insurance. He didn't seem to care and just brushed it off saying that our trach was fine even for 31 trach changes. 😳 That the company that makes the trachs just puts a safety notice of only using a trach for 5 changes as a way to sell more trachs. 🙄 Yet no one we have talked to has ever heard of a patient never getting a new trach. James' cuff doesn't hold the water in the balloon properly after so many uses which is the reason for his leak. And if it were to rip we would ne...