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Showing posts from May 11, 2021

Day 132 - Too Much, Too Fast

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Tuesday, May 11th, 2021 Good day overall. Tomorrow we change Doctors again. Today we had James had 3 really heavy dirty diapers this afternoon. We were waiting for those! Wouldn't be surprised if he loses weight tonight. Changes: Gained more weight - now at 4500 grams (9lb 14.7oz). He has been gaining a little too much too fast; it's not a healthy gain. So although we are increasing to 110mls we have switched out a formula feed for a breastmilk feed. So 4 Breastmilks (20 calories) and 2 Formulas (30 calories).  Mom and Dad did the trach tie changes again themselves. We feel confident in this process but will only get better the more we do it. Tomorrow is the trach change! Scary for us, but we are going to attempt this together tomorrow. We will need to effectively communicate who is doing what. Who is pulling the old trach out, who is putting the new trach in, who is disconnecting the oxygen, who is reconnecting the oxygen. Those are the main steps that need to be identified an...