The Journey of James Weston

Saturday, August 28th, 2021 Woke up to James kicking off his IV. He ripped it right off his foot. The nurse wanted to get the IV team but Mom reassured her he didn't actually need the line. Today was the worst day for James so far in 8 months. Completely inconsolable. Sedation meds either not helping at all or only for very short periods of time. We tried Tylenol x2 and Morphine.  We are thinking it is either GI related, withdrawal or teething... 🤷🏻‍♀️🤷🏻‍♂️🤷🏼🤷‍♂️ All guessing here. No one knows. The on-call Doctor was in the room with us watching him and was just as puzzled as us as to what was causing him so much pain. We are definitely not clamping his G-tube today. So we started trying everything all at once... Took him off the LTV and put him back on the Servo ventilator (we did see a response from this for a brief moment) Increased his PEEP to 12 Increased his clonidine dosage, instead of weaning Gave him an Albuterol treatment Stopped his feeds Honestly, he just kept s...