Day 446 - Family Heads Back to Jax

Monday, March 21st, 2022 Still waiting on our DME to deliver us a new ventilator. Our backup ventilator hasn't been working since March 1st! Supposedly they are going to come tomorrow. Today the family heads back to Jacksonville. Juju got cuddles before hitting the road. Leaving us with a ton of prepared meals and snacks! 😋 James started breaking out in a rash the same one he got before when he was on Bactrim. Small tiny little bumps on his face neck and chest. When Mom had brought this up to the Doctor in the hospital he dismissed the symptoms as just baby rash because they didn't look like hives. However the timing on this rash both times while on Bactrim has Mom questioning if he is allergic. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...