Day 120 - Custom Trach Ordered & Hernia

Thursday, April 29th, 2021 Last night weighed in at 4050 (8lb 14 oz) Tonight 4105 grams (9lb)! Today's events: 9am Physical Therapy Goal is to keep his arms and hands forward. Either with a rolled up towel or by pressing at his shoulders forward. We also need to put together a day time schedule of activities James can do to help with light cycling. 10am Bedside Update with Doctor James officially has hernia. The Doctor had Mom feel it. It makes a very loud squishy sound when you push the intestinal loop back into the abdominal wall. So James will definitely need to have surgery, but they want to wait closer to discharge so that he is bigger. We started microweaning the methadone in the afternoon. 1pm Speech Therapy James had several episodes during this. He really does love his pacifier and milk but was having a hard time due to the lung spasms. Goal is for Mom/Dad to hold James daily. Try to have as much skin to skin as possible. Even if this is simply James' head on our arm. ...