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Showing posts from November 28, 2022

Day 698 - 😁 Phone Call with Our Pulmonologist 📞 🫁

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Monday, November 28th, 2022 Mom and James spent the whole day together doing his physical therapy exercises, playing with toys, and Montessori-ly exploring the house. We had a phone call scheduled with his pulmonologist in the evening after he was done his rounds. The goal of this phone call was to speak to him about where James is at and to get clarification on the path ahead. Since we have not been able to schedule an appointment to meet with him and have been meeting with his nurse practitioner instead, we just wanted to get on the same page. The correct page! The conversation went great! Mom let him know that we were up to 5 hours twice a day off the vent this week (Mondays being our first day of the week)! He was really excited and wasn't upset at all that Mom decided to just do her own schedule. The pulmonologist trusts Mom because he knows that she has done a ton of research. As an example, very early on while we were still in the NICU and it was her first time meeting him, ...