The Journey of James Weston

Thursday, April 28th, 2022 Today was James's follow-up helmet appointment! She shaved down 3 spots that have really been making his head turn red. Two of those spots are now bald and there are no hair follicles. 😥  James rocked his new Ledd Zeppelin Tshirt from Aunt Robin. The easiest outfits right now are t-shirts and shorts or rompers. The helmet people said they do not want him in pants or long sleeves due to overheating. Even though we have to disconnect his circuit to pull a t-shirt over his head, it's much easier to access his G-tube site which we now have to do often. P.S. You can email James your love and support as often as you’d like. Mom and Dad read these email to James as they come in. We all love them! JamesWestonAbramowitz@gmail.com