The Journey of James Weston

Saturday, September 4, 2021 Early Morning :   James finally had a bowel movement after 24 hours of not going.   It was a large one.  💩 James was able to have a FULL NIGHT SLEEP. His heart rate stayed under 100 for 95% of the night.  He was relaxed, calm, comfortable (even though his neighbor was crying bloody murder ALL NIGHT).  Morning:    James woke up around 7:30a with another large poop.   Dad started the morning routine closer to 8am. It begins with soft Disney music for 15-20 minutes. Then open the blinds to let light in. Then play with a few toys.   Then CocoMelon for an hour. Then read a book. Then play guitar and sing. Then more CocoMelon. Then toys. Then a nap at noon. (We will see if it sticks  🤷‍♂️) We had the head of GI come in and briefly examine James. He reviewed a few of the past X-rays and is curious as to what’s causing some much bile to come out of the Gtube. He thinks there may be an obstruction in the d...