The Journey of James Weston

Monday, January 17th, 2022 Today James had a GI appointment. Dad moved around his schedule to accommodate so we wouldn't have to cancel since our nurse called out. Before our 2pm GI appointment Mom called the pediatrician's office to see if she could schedule a stop in while we would be at the complex Clinic regarding James's rash. The office voicemail said they were closed. Well we got to our GI appointment dad walked over to the pediatrician's office and let them know that James had a rash and we would like to be seen today. They told us they would schedule us for 2:45pm. Well we waited in the waiting room for 1 hour, didn't even get to see the GI doctor till 3pm. These long waits are always stressful because even though we have a full oxygen tank and James does pretty well with his oxygen, the ventilator batteries do not last! The ventilator has an internal battery that last about 45 minutes and two external batteries that last about 1 hour each. So when we start...