The Journey of James Weston

Saturday, March 12th, 2022 James got some snuggles and a nap with Dad.  You can see in some of the photos of James getting tangled in cords that he has a lot stacked against him even if he was just a full-term 1-year-old.  He is 14 ½ months but only 11 months adjusted. He was sedated for 9 of those months and was pretty much bedbound. Other full-term babies have been active since birth. James has only had about 5 ½ months of moving around. When he does want to do tummy time, roll over, and just be a one-year-old he has to battle cords, tubing, ad know what side his circuit is on so he can figure out which way to go so he does not get decannulated or disconnected from the ventilator. Even Mom is unsure of which way to flip over sometimes, so how can we expect James to figure it out. It's like American Ninja Warrior Baby. 🏋🏻‍♂️🇺🇲🦅 Uncle Dr. David stopped by for dinner before be left with Dad left for the comedy show. Mom was going to handle trach care herself tonight. Tomor...