The Journey of James Weston

Sunday, January 16th, 2022 The night was rough because every time an alarm went off both of us jumped out of bed to see what was happening. Most of the time, the ventilator was just alarming LOW PEEP because James has a leak in his trach (his cuff won't stay inflated). It's not a terrifying alarm, it's just that it's the same exact sound as the DISC/SENSE alarm 🚨. And that one is terrifying. 🤷🏻‍♀️ Below is a YouTube video explaining all of the things that could be causing a DISC/SENSE alarm. Overall James slept well. But this was the night Mom would have normally slept upstairs by herself so it was just another night shift for her again. Hopefully she'll get to take a nap sometime this upcoming week. 😆 The hardest part was on our backs. Leaning over the Pack N Play to change diapers, suction, or do anything with his GJ. We figured out a trick which was to sit in a chair and lean over. I think for the most part the goal is to only have him in the back and play fo...