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Showing posts from January 26, 2022

Day 392 - James Loves Games!

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Wednesday, January 26th, 2022 Our nurse took off today so Mom was on for a stretch of 36 hours. 🥱 James had physical therapy in the afternoon and we worked on tummy time and getting into a seated position from the floor. He hasn't learned how to use his hands and arms to bear weight. Right now he just lifts up his head using his neck muscles. Our PT said they are typically 6 years old before they can just sit straight up without rolling to the side.  No response from our DME supplier yet on the new trach order. We can't wait until we are switch DMEs!  James loves games that are cause and effect. He doesn't know if he is doing something he's not supposed to and just sees our response as a game. So things like pulling on cords and tubing, attempting to rip out his G-tube, biting our hands... They are all a game to him because he sees that it gets our attention. We looked into the Lovevery and Montessori toys and will be trying to make DIY versions, because they are way o...