Day 448 - Extending James' Room 📚 & Starting Bolus Feeds
Wednesday, March 23rd, 2022 Today Mom put together an Ikea shelf to extend James' room. Since we relocated the large bookshelf to Dad's home office we could open up this space for James. Imagine taking your living room and removing half of the items so you could turn it into an ICU nursery. This is where Mom and James spend their day. It's a small space so it has to be organized and accessible. We also started James' bolus feed in the morning. Mom made sure to vent his G-tube before given him his prevacid through his G and then his 2 hour bolus which we are doing at 95ml/hr for 2 hours for a dose of 190. Then James got a 2 hour break. So far so good! We were able to get this all done before PT in the afternoon. In the evening we had James practice with his Passy Muir valve getting ready for the big day on Monday for his swallow study. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How hea...