The Journey of James Weston

Friday, September 9th, 2022 So James starting biting himself on his arm. Is this a normal phase? 🦷 During the day things were great! James played with his toys and explored. Then the evening took a turn... At around 6pm we contemplated going to the ER due to his respiratory distress. 🚑 It seems to always be on a Friday evening once our pediatrician has closed and we are reliant on the ER (and night shift, on top of it 🙄). James ended up having a fever of 101, high respiratory rate, high heart rate, increase in secretions, needed an increase in oxygen, and was having lung retractions. The increase in secretions and increase in oxygen started on Wednesday when Mom was up with him the entire night. We really tried to think about what they would do at the ER for him. Because of the lung retractions they would probably do an x-ray, but it wouldn't show anything because we knew this was a trach infection. They would do a sputum culture and it would come back that he was colonized with...