The Journey of James Weston

Thursday, February 9th, 2023 🤕 Again, James had 25 sensors attached to his head, face, and chest. They monitored his brain waves, oxygen levels, heart rate and breathing as well as eye and leg movements while he slept off the ventilator. We have no idea what these results will show. On one hand, Mom had to suction him throughout the night from 10pm until 5am, which we normally don't have to do. (Mom did not sleep, but James was able to sleep through everything.) On the other hand, he did not need any oxygen last night. 🤷🏻‍♀️ This is the longest he has been off the ventilator and just on an HME; a whole day and a half! Both our pulmonologist and our ENT let us know that they don't rely on the sleep studies to provide very accurate information. These two doctors have always been up on the latest research and studies have found that sometimes the results will come back saying there's a sleep obstruction, which ironically sometimes is just the trach itself. 😂 We won't h...