The Journey of James Weston

Monday, December 20th, 2021 Mom bought James this plaid Christmas onesie in a size 9 months! 🤦🏻‍♀️ It looked really long in the legs but it's not snapping under his diaper. It's way too small! Getting it on felt like a scene from Tommy Boy. What's crazy is that some 12 month sizes in the same brand are getting really tight on him. And yet in another brand, they are huge! 🤷🏻‍♀️ The good thing is that James is growing! He gets measured and weighed at certain doctor's appointments but we can also tell just by his clothes getting a little tight. Especially in the torso. His legs and arms are still a little short. We need to schedule a follow up appointment with orthopedics and genetics. Yay co-pays in the new year! Mom called the DME today to try and get an update on the peer-to-peer review outcome on the trach. But of course no answers. Just a name of someone to chase down who might know something. Left a voicemail. We also followed up about being shorted some supplies...