Day 257 - Clonidine Wean & No Nurses
Monday, September 13th, 2021 You may be asking why are swe still keeping track of the Days. At first it was to see how many days we were in the hospital, but now it's a countdown to when James will be decannulated. Sunday night, Mom and Dad slept downstairs on a queen air mattress that didn't have a hole but sure was uncomfortable. James had a pretty rough night, waking up constantly throughout the night. Mom and Dad took turns getting up. Normally he is pretty good about sleeping from about 9:30pm/10pm until 5am-7am. At least this is what he did in the hospital most nights. But for some reason he did not. There are so many variables we don't even know where to start. His clonidine was weaned today. It went from 3 doses yesterday to only 2 today. We think this is a pretty big wean. Tomorrow is our first pediatrician appointment. No nursing today or tonight. The Night Shift nurse ended up having an emergency and told the agency she would not be able to make it. She said she...