Day 357 - "Don't I Look Cute in Red?"
Wednesday, December 22nd, 2021 James wore his new red Burt's Bees onesie that Aunt Robin cricuted with, "Dont I look cute in Red?" Mom tried to nap in the morning once the nurse came. However with the vent and pulse alarms going off constantly it's quite literally impossible. James had physical therapy in the afternoon. We tried something new and disconnected his J-tube and G-tube extensions from his GJ button. This immediately allowed James to tolerate tummy time, so that must have really been hurting him. It is a good ½ inch of plastic pushing into an already sore area of the stomach. 😥 Mom made phone calls handling supply orders and getting medications refilled. To give you an example of the competence of some of the DME people "handling" our insurance denials...one stated, "I know the trach is being denied because it's custom, since it's made out of different custom materials". 🤯🤦🏻♀️ No, it's a custom length. This just validate...