The Journey of James Weston

Tuesday, December 13th, 2022 James had therapy in the morning and he showed her his new skill of sitting up and playing the piano. He is currently obsessed that this Baby Einstein piano has legs that he never knew about. It's a whole new toy now! Overall James has been doing really good with sitting up for long periods of time instead of wanting to be on his back lying down. He really does love music and keeps switching between the "guitar", pianos, and xylophones. 🎹 🎸 Mom gave James some prune puree for dinner and he loved it. Unfortunately it immediately poured out of his stoma and filled up his shirt. It was a massive mess! It is so frustrating to have a child who wants to eat by mouth and yet it won't stay in their stomach. We feel kinda hopeless with trying to transition eating from his J back into his G if it's just going to be like this everyday. 😥 We need to find a new GI Doctor who will help us STAT.  Check out James' prune goatee 🧔🏻‍♂️ and a pho...