Day 449 - Early Steps 6 Month Evaluation & Trach Change
Thursday, March 24th, 2022 Today the bolus feed gave Mom some trouble. James wasn't really tolerating the rate that fast. It's a fine balance between hanging the Farrell Bag to high and gravity feeding him or hanging it too low and draining his stomach contents. If it's hung at just the right level then he will get fed and still be able to push back air if he needed to into the Farrell Bag. We are still figuring that out. For now, lots of outfit changes, soaked crib sheets, and laundry for Mom. 🧺 P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...