Day 267 - GI appointment & No Nursing Today
Thursday, September 23rd, 2021 Today we did not have any nursing but we did have our first outpatient GI appointment. Our M, TH, F nurse needed the day off today and will be starting on Friday for her first shift with us. The GI appointment was very similar to our pulmonology appointment on Monday, in that it was very overwhelming to get to the hospital for the appointment and it really felt like it could have been a telehealth instead. The waiting room was packed full of kiddos that were not medically complex. We waited to get called back as ventilator and pulse ox alarms went off constantly. Must have been 120° outside here in Florida. James was drenched in sweat and very upset. Mom and Dad were also soaked just getting in and out of the car. The only change we made at our GI appointment was that we increased his feeds from 37/hr to 38ml/hr. They wanted to get his height and weight which means getting him out of his car seat attached to multiple pieces of equipment to lay him do...