Day 163 - 138 Days later...

Friday, June 11th, 2021 Only changes: Temporarily held off on robinol due to thick secretions not coming up. Increased Auto control mode to 2x a day (1 hour on day and night shift) Another new nurse last night and kinda again this morning. Basically the last 3 nurses we've had never had were new to James. Today our nurse had James once on January 24th. Why do we remember? Because it was the last Bucs game before the Super Bowl. Everyone working that day was focused on it and it wasn't the greatest experience. Below is a picture so you can see what he looked like comparatively. He was so tiny! Do you think there have been some changes? Just a few things! 😂 It's hard when they don't know your baby and needing to explain everything over and over. Report doesn't give enough information. Overall the day wasn't great. Just one of those days where Mom felt like she could do this at home, because she did everything on her own. She never felt comfortable leaving the r...