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Showing posts from January 31, 2022

Day 397 - Helmet Appointment & Leaving Messages for Doctors

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Monday, January 31st, 2022 In the morning, we went to James' Helmet Appointment where he was evaluated for a helmet to help with his flat spot, which is called plagiocephaly. They did a 3D scan and determined that he was definitely a candidate for it but we are coming in on the late side. Honestly it's such a shame that we are just getting started with this now. His flat spot started after he got his tracheostomy at 3 months; however, he was not stable in the NICU and was having several BPD episodes every day. At 6 months, James could have received a helmet in the PICU because he was stable and not having BPD episodes. Several babies get their helmet before they even get discharged. Even after discharge the pediatrician never brought up the possibility of getting a helmet. After 8½ months in the hospital it should be a standard suggestion knowing that almost all babies will have a flat spot. This should not fall on the parents to have to research and bring these things up! So t...