The Journey of James Weston

Sunday, May 9, 2021 Last night :   James had another weight gain last night. He’s 4410g or 9 pounds 11 ounces.  He had a pretty calm night. He slept for most of the night except for two small episodes.  The night nurse did a great job at working with James and getting him comfortable.  She did a wash cloth bath due to the IV his his foot.  Didn’t change his gauze due to him sleeping and not wanting to disturb.  Overall, a pretty good night.  We did attempt a photo shoot with a new onsie that Dad bought for Mother’s Day,  but James knew it was too big and just wasn’t having it.  Morning :  James has one of his favorite nurses today outside of his Primary.  She’s REALLY good. James greeted her with a small episode around 8am. After we calmed him down with the fan and firm pats on the back, she showed Dad a few ways that she likes to hold him and maneuver him. She held him for about an hour in different positions as Dad obs...

Saturday, May 8th, 2021 James had a pretty good night. He had a good stretch of sleep from 2:00 am to 6:00 am. Yes Mom got 4 hours of sleep! He had his typical event at 7:00 am welcoming in shift change bradying and desating. He then was able to take two short naps in the morning which was super helpful for Mom as well. This morning James did tummy time immediately when the shift changed. Then he spent time in his swing. Sleeping through both of these activities. His primary nurse held him for a good while keeping him alert and chatting with him about all the different types of foods that he'll eat one day. 😂 James has been doing a new thing this week where he turns his head back and forth looking side to side and all around. He is working on his head control. It is adorable! However Mom has not been able to take any pictures or video of him doing this because either an RN or RT is holding him up at the time and they cannot be photographed. Maybe sometime this week Mom will be abl...