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Showing posts from March 11, 2023

Day 801 - James Dancing to Miley Cyrus 🎶

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Saturday, March 11th, 2023 Today Dad had to go to a wedding so Mom and James listened to Miley Cyrus's new album Endless Summer Vacation on Disney+. [Video below] James really hears the music, dancing slow and fast, and knowing when that beat drops. James had to stop what he was doing to get his groove on! 😆  We kept him on the ventilator again to him the much needed humidity. Mom needed to suction him a lot. He really hates when we suction his nose and we have to hold him down pretty good. With RSV being upper respiratory suctioning his nose gives him immediate relief. We also decided to do Albuterol with his Pulicort treatments twice a day, along with CPT, and a random sodium chloride treatment here and there. He played with a number puzzle and we are really working on counting now that James knows his colors. Supposedly the order to teach children is colors, shapes, letters, and then numbers! James is very curious and will look at you for help asking you to explain what he is p...