Day 623 - The Best News Ever!
Wednesday, September 14, 2022 James had Early Intervention therapy and James again cried the whole time. He kept turning around to look at Mom and just wanted to be held. as soon as Mom put James back in his bed he grabbed his pacifier put it in his mouth and grabbed a bean bag and threw it over his eyes. He was tired! 😩 😴 While he was taking a short nap Mom starting packing up to leave for our pulmonology appointment. When we arrived at the office we waited for a while in the lobby and James was doing fine. However as soon as we got back to the room James became emotional and started crying. It's almost like he knew he would have his 2 synagis shots and end tidal C02 reading. We spoke to the doctor and let him know we wanted to be on the same page with starting trials off the vent and that James was doing great! So put off the shots until the end of the appointment. Then we received excellent news at our appointment! The pulmonologist wanted to decrease James' PEEP to 5! He...