Day 616 - Trying to Stand Up On His Own
Wednesday, September 7th, 2022 Tomorrow we are scheduled for another pulmonology appointment. But just to be sure we would see the Doctor, Mom called the office. Sure enough they said he would not be in and we would be scheduled with the Nurse Practitioner. We decided it would be best to just reschedule since we would really like to move James forward with trials off the ventilator. It would be great if everyone was on the same page, but that is not the case. It's a shame that Doctor's offices do this nowadays... They meet with you and then transition you to see an NP instead. We would like consistency. Considering this is one of the only Doctors we really like, we would love to actually meet with him. So we rescheduled for next week! But it's better than waiting another month! Our EI therapist came over and we discussed what some of the appropriate play would be at his age. So we are working on things like James acting out a nursery rhyme using his hands and playing consec...