Day 684 - Bad Hair Day & 3 Hour Sprint Trials
Monday, November 14th, 2022 Mom took James upstairs to his bedroom while he was doing his morning trial off the vent. Today we increased the trial to 3 hours. Mom had reached out to the FB group of Moms with Trach Babies and asked everyone for their sprinting schedules, specifically for those with babies with severe BPD, no other complications, with similar ventilator settings. Some moms that just take their babies off the ventilator and see how they do. 😳 Others are weaning very slow sometimes only increasing by 10 minutes a week. 🥱 Since we have not been able to speak to our doctor and are only getting spotty information via our nurse practitioner. Mom decided to take the schedule into their own hands. We will be increasing by 1 hour 2x daily each week. That means by the second week of December James will be 12 hours off the vent during the day. It is very common for the next step in after that is to be off the vent during naps, but we've already been doing that. Mom has been m...