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Showing posts from April 6, 2023

Day 827 - James Officially Tries the Backpack! 🎒 & Current Feeding Schedule ⏲️

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Thursday, April 6th, 2023 Today James had physical therapy and since it was at 11am it lined up perfectly to his feeding schedule. Below is his current continuous feeding schedule. James has his Farrell bag connected 24/7 to his G except when he receives water in his G, then it is disconnected for that hour and a half. 11:00pm-8am: Formula/Water with ice packs overnight (Rate: 45ml Dose: 405ml) 8:00am-10:30am: Water in his J (Rate: 45ml Dose: 100ml) 10:30-12:00pm: Water in his G (Rate: 50ml Dose: 75ml) 12:00pm-8:00pm: Formula/Water with ice packs (Rate: 45ml Dose: 360ml) 8:00pm-11:00pm: Formula/Water no ice packs (Rate: 45ml Dose: 135ml) Overall his calorie breakdown is 40ml formula + 5ml water/ hour for 20 hours. Then 175ml of additional water. 🎒 During the time James is fed in his G, it's a great time to allow him to scoot around with his backpack on, since he is also disconnected from his Farrell bag. This way we only have to worry about the feeding pump. It's also lighter ...