Day 447 - Speech Appt & Vent Delivery
Tuesday, March 22nd, 2022 We had an early morning speech appointment. The purpose of the appointment was to prepare us for the swallow study next week. James used the passy muir valve but cried this time at the end probably because Mom was holding him. After the appointment a respiratory therapist from our DME was supposed to come right afterwards so we rushed to get home. She ended up showing up 1.5 hrs late. Our expectations of our DME are so low at this point. When she showed up James was finally taking a nap. She put in James' settings to the new ventilator and took our broken one back with her. Mom had purchased some fabric trach pads on Etsy that a ton of Trach Moms had recommended. It turns out they were too thick and not allowing a good enough connection to the stoma. This caused a drop in his tidal volume and oxygen. Once we switched back to the 2x2 gauze his numbers went back up. This was after a two day investigation, asking advice of other Trach Moms on FB, calli...