Day 810 - School of Rock 🎸 & Night Eye Masks 😴
Monday, March 20th, 2023 Around 2:30am Mom was just getting to sleep as James had rough night with suctioning and needing oxygen on the vent. Mom figured She should call St Joe's PT to let them know that we wouldn't be coming in and James still wasn't doing well. James spent most of the day on the vent and did better most of the day. In the evening, Mom put him on the HME so we could go upstairs for a little bit before trach care. Monday is typically Mom's "On the Phone" day. We started off the morning with the Vision Therapy place following up to schedule James for an appointment! Yay! 👏 They wanted to get us in tomorrow but since he is still sick we scheduled for their next available which was late April. Mom also confirmed Early Steps for a revaluation appointment for Friday via Zoom and confirmed two appointments for this week for our pediatrician and pulmonology. And these were just the phone calls regarding James! We had early intervention therapy today...