Day 534 - Tylenol & Motrin Around the Clock ⏰🤒
Friday, June 17th, 2022 We have been doing extra Albuterol treatments as well as Tylenol and Motrin every 3 hours. Some of the symptoms of having a sick baby on a ventilator is that they need extra suctioning, and since their body is creating this extra mucus it is also coming out of his stomach either into the Farrell Bag or directly from the stoma. James hasn't needed an increase in oxygen which is good. Currently Mom is doing worse than James. Dad was able to sleep downstairs last night to help Mom get some extra rest. One good thing that happened recently is that our new Medicaid Case Manager has actually followed up on some things and is making progress. She sent Mom a text letting her know she's working with our pulmonologist's office regarding the missing suction machine, order for the pediatric oxygen concentrator, and authorization for the Farrell Bags. Our previous Medicaid Case Manager, whom we had had since August 2021 (and was recently promoted 😆), had never f...