August 2023 - The Big Move & Making Big Moves!
August has been such a busy month! 🍴We started off the very beginning of the month with a GI appointment. Dad was able to come this time, which was super helpful. James likes to scream and it makes it nearly impossible to talk to the doctor and dietician. This was only our second appointment with this new doctor; the first time was at the end of May. Since then James has made so much progress! Well today was no different. The doctor switched out his GJ button for a MIC-KEY G-tube button in the office! It was almost 2 years to the date when James got his GJ placed in the PICU. The reason she was okay with switching the button was because James had been getting fed through his G-tube for 2 months and he also was tolerating his new formula which was higher calorie. The doctor also gave us an okay to wean James off of Prevacid over the next week! Her instructions were to increase his rate until we get 100 ml/hour. At the appointment he was only at a rate of 47ml. Mom and Dad did the math ...