The Journey of James Weston

Friday, July 23rd, 2021 Updates: At 12:30pm, James had a massive diaper. All over his bed, filled up 3 diapers, and a onesie. 2nd bowel movement today. Mom talked to the Doctor to see if we can change the lactulose to just once a day so we will skip the evening dosage. Mom did his wipe down bath by herself. James did 7 hours on the LTV today for both day shift and night shift. Tomorrow we are getting a new doctor that we've never had before. We've asked the nurse to start doing mylicon gas drops again. 🚨 First emergency trach out situation! We were doing Trach ties and the RT was insistant on holding up the back of his head instead of him laying on a rolled towel. Mom asked several times if he could just lay him down, because that is the way she was trained to do it and is comfortable that way (more importantly it's safer). The RT let Mom know that the swaddle not working, James was getting out of it (this happens everytime we do trach care). Well we heard James make a ful...

Thursday, July 22nd, 2021 Update/Changes: Removed all Prune Juice. Started Lactulose instead, 5mL twice a day. We were not seeing results from the prune juice and 30 mLs was a lot to be taking the place of breastmilk. Ended up doing a 2nd glycerin at 11:30am. James eventually had a bowel movement. PT stopped by to work with James and hung suction tubing across his crib to hang toys from. During rounds, it was discussed that the LTV trial last night was stopped due to James not tolerating it. Mom corrected them and letting them know that they were actually having difficulties and then they decided to bag him, so no James didn't have an issue with the LTV he had an issue with getting bagged. It gets pretty frustrating how many people try and cover their ass when they're talking with the doctor. 5 hours on the LTV during day shift/ night shift ENT came by to look at his new granuloma and she said it's fine. She recommended putting aquaphor on any skin in the back of the neck t...

Wednesday, July 21st, 2021 This day last year James as a Blastocyst (180 cells) was transferred into Mom's uterus! There was a 49% chance that he would implant. He has defied all odds since the beginning and every step of the way! 💪 This is a picture of James as a Blastocyst. Not everyone has a baby picture this early! What's really crazy is that James was first created back in March 2019 when Mom had her aspiration surgery. That's when they retrieve the eggs to undergo Intracytoplasmic Sperm Injection (ICSI). In the ICSI process, a tiny needle, called a micropipette, is used to inject a single sperm into the center of the egg. After James grew for 5 days into a Blastocyst, he was then frozen for a whole year just waiting for the day he was chosen by the embryologist for implantation! Below is an example of the IVF process and how it's normal to lose anywhere between 35-60% at each stage in the process.  Mom & Dad's IVF Journey in 2019 19 eggs retrieved 12 matu...

Tuesday, July 20th, 2021 If Mom wasn't here, what would have happened? Would we even know what went down? Forgotten Feeds... First, it's 10pm Monday night and the feed pumping is alarming. Mom let the new nurse know that the alarm is going off and she needs more milk. This is a continuous feed. She let's Mom know that she actually didn't have any thawed but it should only take 5 minutes. At 11pm, she pops her head in and asks if we need anything. Mom reminds her that we are still waiting on the milk. She then realized she forgot again. So James didn't get fed his 40mls that hour. This was also the time he did his LTV trial on night shift. No Vent Heaters... At 8:45am, Mom noticed the Vent Heater was off and his circuit was cold. The heater runs warm oxygen through the tubing. Humidification is needed by all patients requiring mechanical ventilation via an artificial airway. Heated humidifiers operate actively to increase the heat and water vapor content of inspired ...