The Journey of James Weston

Thursday, October 14th, 2021 (Photos and Video below) We opened the blinds all the way so James could clearly see outside! Our setup to travel within the home (1st floor)! P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️ P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all of you be a part of something so special! 😭

Wednesday, October 13th, 2021 So last night we had a male night nurse do his first shift (8pm-7am). It was pretty awful. Mom let him go the next day. Before doing that she reached out to the FB group to get their opinions on the situation, it was a pretty unanimous response to let him go immediately. Details are posted in that FB posting below. We wanted to share this photo we have of Pop-pop (Mom's dad) and James making the same face. We need to show the comparison of one of his baby photos too. James is definitely a Baby Fallon right now, but we're sure he will get that chiseled jaw line from Dad soon enough. 😂 Everyday he looks older and growing into a little boy. P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️ P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all o...

Tuesday, October 12th, 2021 Today we got the medical crib delivered. Two men drove the parts here from our DME in Melbourne, FL and put it together. It's heavy duty! It's a full size regular crib mattress, so we need to get some bigger sheets! The sides go up and down and it is on wheels. The height is good for us to do trach care and a bath right in his bed. This way we do not have to set up the massage table every night in the living room. We do however still need to disconnect the ventilator circuit to go underneath the railing to prevent rainout. Right now, the circuit would drain into him with the sides up.  Even though the sides go down we do not want to leave them all the way down if we walk away from the crib. He doesn't roll yet but it will be soon.  James also got to try out his new high chair. Thanks to Vicki, Debbie, and Maria for the registry item! It is so comfortable for James to sit in and very safe. The high chair is on wheels and can also can lay completel...

Monday, October 11th, 2021 Today was the first time that Mom went to a Doctor's appointment with just a Nurse (without Dad). This means she needed to be highly directive with loading and unloading the stroller and car. Mom also had to drive while the nurse sat in the back with James. It was successful.  At the pulmonology appointment James was scheduled for his synagis shot. This time they were requiring him to get 2 shots due to his weight. Poor baby was very upset! So much that he had diarrhea immediately. They checked his end tidal CO2 levels which looked good. Mom asked her list of questions which included... If we could let James be vocal by letting a leak in his cuff? And to review interesting billing claims. As far as the leak, since it was affecting his Tidal Volumes they said this would cause lung collapse overtime. So no, we can't let James be vocal yet. Maybe for very short periods of time. Uncle Andrew left to go back to Arkansas. He said Goodbye to James in the pho...

Sunday, October 10th, 2021 The boys went to Dolphins Buccaneers games down the street. Yes, we are only a few miles from the Stadium! James spent the day with Mom. After the game, Uncle David got to meet James for the first time. And Mom talked drugs to the Pharmacist (Uncle David). The adults played a few card games while James took a short nap.  Trach care has been a little difficult lately since James is reaching for his trach and being grabby. We are thinking we are going to need to swaddle him again moving forward. After we do the trach tie change Mom always needs to hold him for a bit to calm him down. Then he gets his meds and goes to sleep. P.S. If you read the blog and are supporting James through his journey we would love you to participate in our video montage of everyone singing his lullaby. Please see the James Weston lullaby post for more details. ❤️ P.P.S. Thank you so much for the lullaby submissions so far! It's so exciting to have all of you be a part of something...