The Journey of James Weston

Thursday, December 30th, 2021 Juju, Aunt Robin, Champ, and Tommy arrived in the evening just in time for James' bath and trach change. He really enjoyed his bath. Lots of photos and videos below! P.S. James' 1st Birthday is coming up! Wouldn't it be fun for James to read an email from you when he is older? What a treasure! His email is JamesWestonAbramowitz@gmail.com. How awesome to get his reply back in like 10 years...

Wednesday, December 29th, 2021 James had physical therapy for the 2nd time this week. Today, he actually tolerated it. Yesterday he just cried the whole time. 😢 We kept him hooked up to the Farrell bag this time and used the bean bag to support and comfort his G-tube, forming a donut. We will need to create something something from foam with a hole for his GJ button that will be able to strap around his stomach so he can roll. The only thing that exists right now is for much older kids and is ridiculously expensive. So off to Joann Fabrics to rig something up with some neoprene!  P.S. James' 1st birthday is coming up! Wouldn't it be fun for James to read an email from you when he is older? What a treasure! His email is JamesWestonAbramowitz@gmail.com. How awesome to get his reply back in like 10 years...

Tuesday, December 28th, 2021 Today James received his first birthday gift in the mail from Aunt Megan in Dallas, Texas. 🎂 He absolutely loved the balls. Soon we will be filling his crib with the 200 balls for a huge ball pit. Mom has been spending every day on the phone, live chat, and email arguing with our Insurance (Cigna), our DME (Brownings), and the Doctor's office. She is 100% getting the runaround. When you hear different excuses every time, it's a red flag. Come to find out that the trach has been approved this whole time, since September 9th actually. A peer to peer review did NOT have to be done. The issue isn't denial which is what Mom has been told, but that Cigna will only cover a $30 reimbursement for a $500 trach. The DME company doesn't want to eat that cost and get reimbursed later after they submit a single case agreement.  P.S. James' 1st Birthday is coming up! Wouldn't it be fun for James to read an email from you when he is older? What a t...

Monday, December 27th, 2021 Jessica came over for a business meeting with Dad to talk shop and to see James. James had several long naps throughout the day, but woke up just before she left. Giving Jess an update on what he's been up to. He gets emotional now when he wants something. He grabs anything and everything around him. P.S. James' 1st Birthday is coming up! Wouldn't it be fun for James to read an email from you when he is older? What a treasure! His email is JamesWestonAbramowitz@gmail.com. How awesome to get his reply back in like 10 years...