Posts

Day 390 - Will the Curls be Permanent?

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Monday, January 24th, 2022 Only time will tell! Nursing today, but no appointments though! James had a good day and Mom followed up on supply orders and insurance issues. Fun! 😊 In the evening, Mom handled the nightly care while Dad caught up on work. James' curls popped right back after she combed his hair! ➰ Praying 🙏🏻 He wants the phone. 🤳 So he can put it in his mouth. 😂 Nope! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Day 389 - James' 1st Guitar Lesson & A Surprise Visit

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Sunday, January 23rd, 2022 Fun Fact: James and Dad have the same hair in these photos. With the pulse ox cord it looks like James is playing an electric ukulele. Last night was Mom's night of the week to get a break from night shift. 😴 So that meant that Dad took care of the Sunday morning duties as well. Dad got in two full hours of eye patching bright and early! He also made more delicious protein pancakes. He can't believe how easy it is! 🥞 🎸In the early afternoon James did tummy time and had his first guitar and ukulele lesson with Dad while Mom played photographer. Later in the day, Juju and Cathy stopped by for a visit and brought over an authentic Polish meal. James even joined us at the kitchen table. 🇵🇱 🍽️ 🩸💉💊Side note - We received the results from his labs and we are discontinuing Calcium! So overall we are stopping calcium, milk of magnesia, erythromycin, and simethicone. This is such good news! Now all we have left is sodium chloride, melatonin, poly-vi-so...

Day 388 - Cold & Rainy Saturday 🌧️

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Saturday, January 22nd, 2022 At least we have a photo! 😂 It was cold and rainy. Dad was able to give Mom a 2 hour break to sleep upstairs in the morning. He worked with James on his eye patch and had him in the bouncer. Our plan was to go to the zoo or aquarium to take James out of the house but instead Dad made pancakes for the first time in his life and Mom worked on organizing medical supplies. She ended up finding a used Ikea Shelf on FB Marketplace for 50% off in excellent condition to help organize the closet full of medical supplies. Sometimes you just have to look daily for the good deals. In the late evening we found out that Juju was in town nearby for a bowling tournament with our good friend Cathy. They said they would stop by in the afternoon tomorrow for a visit.    P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a respons...

Day 387 - Happy Baby! Happy Friday!

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Friday, January 21st, 2022 Cute photos! We think Blue is his color!  No response still from our DME, medical supplier.  Thinking about possibly going to the zoo or aquarium this weekend since we won't have nursing. It's cold in Florida and we turned the heat on! 🥶🌴  P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...