The Journey of James Weston

Saturday, January 29th, 2022 Nurse worked today for a few hours, because she wanted an extra shift. Dad had his end of the year awards ceremony over Zoom. You can check out the part when they talked about James and our journey here ➡️  Dad's Cutco Awards Ceremony In the afternoon, James watched the penguin 🐧 movie Happy Feet while Dad held him. Mom worked on her emergency travel spreadsheet for medical supplies. After some research Mom found that if you are a Bank of America card holder you get to go to the Florida Aquarium 🐳🐠🦈 🐋🐟 for free on Sundays (well that's according to the BOA website). But on Facebook most people were saying it's really only the first Sunday of the month. I guess we'll see! So tomorrow we decided that we would have James' first really outing.  In the evening James took a late nap in Mom's arms. Dad teaching James to wave. James loves tags. P.S. Do you follow James' journey? James would love to read an email from you. His email ...

Friday, January 28th, 2022 We have now switched over from Cocomelon to Songs for Littles. Trying to limit screentime overall but sometimes it's necessary when we are needing him to stay still while he's being vented. Several Moms have said that their toddler's speech increased from watching Songs for Littles with Miss Rachel. She is a music education school teacher and her husband is the musical director for Aladdin on Broadway so it's pretty well done. There is a photo of James sitting up and leaning on his leg using his hand. This is a first! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Thursday, January 27th, 2022 Our nurse who took off yesterday decided to work today. Basically she just works whenever she wants to and makes her own schedule. Don't know how you could work an office job and do this!  It doesn't matter how many toys are in front of him James will always be more interested in his pulse ox cord! 😂 James loves the color red! He really gravitates toward red toys.  So since we decided to wean the milk of magnesia James has been having small to non-existent stools. We are going to give him 3 days and then we may need to go back up again on the dosage. No appointments until next week. P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...

Wednesday, January 26th, 2022 Our nurse took off today so Mom was on for a stretch of 36 hours. 🥱 James had physical therapy in the afternoon and we worked on tummy time and getting into a seated position from the floor. He hasn't learned how to use his hands and arms to bear weight. Right now he just lifts up his head using his neck muscles. Our PT said they are typically 6 years old before they can just sit straight up without rolling to the side.  No response from our DME supplier yet on the new trach order. We can't wait until we are switch DMEs!  James loves games that are cause and effect. He doesn't know if he is doing something he's not supposed to and just sees our response as a game. So things like pulling on cords and tubing, attempting to rip out his G-tube, biting our hands... They are all a game to him because he sees that it gets our attention. We looked into the Lovevery and Montessori toys and will be trying to make DIY versions, because they are way o...

Tuesday, January 25th, 2022 Just cute photos today! P.S. Do you follow James' journey? James would love to read an email from you. His email is JamesWestonAbramowitz@gmail.com. How heartwarming for him to receive these and fun for you to get a response from him in like 10 years...